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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Upcoming events!

¿Que es Simons Searchlight?

Sabado, Oct 2 @ 9 am EST
Learn More
Oct 2

Cannonball for a Cure

October 6 - October 9, 2021
Oct 6
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1st Annual Caren Leib Gala & Auction

Saturday, October 23 @ 6 pm EST
Oct 23
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Discover our latest news & updates

COMBINEDbrain & Duke University team up to receive a prestigious FDA grant
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Syngap Research Fund (SRF) Partners with Autism BrainNet
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Cannonball for a Cure #UFDcure
#SyngapCensus Q2 2021: +46 in #2Q21
808
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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SYNGAP1 Assigned An ICD-10 Code:  F78.A1
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What should I ask in my genetics appointment for SYNGAP1?
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Meet SYNGAP1 Patients

Teona
Russia
4 years old
Brycen
Michigan
3.5 years old
Saylor
North Carolina
4 years old
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

SRF is phenomenal! I love how devoted they are to finding a treatment/cure for our favorite syngapians! I am blown away with this nonprofit organization and everything that they stand for. So thankful to have amazing individuals who have made it their life mission to helping our loved ones and their own!

Brittney

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