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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Register for upcoming events!

Prepare for the Next SRF-Funded Study with Dr. Frazier

Saturday, July 17th, 9 am PT
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Jul 17
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Discover our latest news & updates

Can Equine Therapy aka Hippotherapy help your Syngap patient?
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What’s the Life Expectancy of Someone with SYNGAP1
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2ND ANNUAL SRF SYNGAP1 SCIENTIFIC ROUND TABLE #SRFRT2
EATING WITH EMMITT.
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#SyngapCensus Q1 2021: +57 in #1Q21
762
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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Share your love for someone with SYNGAP1 for #Splash4Syngap
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Another SRF contribution to SYNGAP1 research:  Patient-derived cell lines to test treatments
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Meet SYNGAP1 Patients

Lina
Chile
3 years old
Vivien
Frankfurt, Germany
19 years old
Kai
Maryland, USA
2.5 years old
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

SRF is phenomenal! I love how devoted they are to finding a treatment/cure for our favorite syngapians! I am blown away with this nonprofit organization and everything that they stand for. So thankful to have amazing individuals who have made it their life mission to helping our loved ones and their own!

Brittney

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