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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Register for upcoming events!

Cannabinoids: What do we know? Join our live webinar!

January 30th, 2021 @ 9AM PST
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Jan 30

Primer Congreso Científico Virtual SYNGAP1 en Español #SRFCC1

February 19th, 2021 @ 6AM PST
Feb 19
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Celebrate Caren with us for Rare Disease Day!

February 26th, 2021 @ 4:30PM PST
Feb 26
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Discover our latest news & updates

Únase a nosotros a el Primer Congreso Científico Virtual SYNGAP1 en Español #SRFCC1
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SRF is raising for #SRFFraizer to prepare for clinical trials.
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2ND ANNUAL SRF SYNGAP1 SCIENTIFIC ROUND TABLE #SRFRT2
EATING WITH EMMITT.
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#SyngapCensus 2020: 705. +57 in #4Q20
705
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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We finished 2020 Strong, 2021 will be even better for SRF.
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What if you could get your SYNGAP1 child a treatment one year sooner?
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Meet SYNGAP1 Patients

Kimberley
United Kingdom
9 years old
Kasia
Tuscon, Arizona, USA
3.5 years old
Patrick
Ohio, USA
17 years old
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

SRF is phenomenal! I love how devoted they are to finding a treatment/cure for our favorite syngapians! I am blown away with this nonprofit organization and everything that they stand for. So thankful to have amazing individuals who have made it their life mission to helping our loved ones and their own!

Brittney

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