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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Register for upcoming events!

Sindrome del Cuidador Agotado

9am Colombia/10EST/11am Argentina y Chile/4pm Madrid
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Apr 17

An integrated approach to investigating GI & neurological comorbidities caused by SYNGAP1

April 22nd @ 10 AM Pacific
Apr 22
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#Sprint4SynGAP - SRF 5k Fun Run

April 24, 2021
Apr 24
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Discover our latest news & updates

#SyngapCensus 1Q21 +57 new patients
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SRF is part of COMBINEDbrain ensuring more SYNGAP1 visibility
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2ND ANNUAL SRF SYNGAP1 SCIENTIFIC ROUND TABLE #SRFRT2
EATING WITH EMMITT.
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#SyngapCensus Q1 2021: +57 in #1Q21
762
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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EnABLEing Financial Security for your SynGAP-ian - Setting up a 529 ABLE Savings Plan!
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Meeting Caren--Interview with SRF’s Jess Duggan
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Meet SYNGAP1 Patients

Jocelyn
Kansas
5 years old
Enzo
São Paulo, Brazil
8 years old
Kyle
Ohio, USA
15
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

SRF is phenomenal! I love how devoted they are to finding a treatment/cure for our favorite syngapians! I am blown away with this nonprofit organization and everything that they stand for. So thankful to have amazing individuals who have made it their life mission to helping our loved ones and their own!

Brittney

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