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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Upcoming events!

SRF | Weekly Family Meeting

Wednesdays @ 5pm PT/ 8pm ET
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Oct 20

1st Annual Caren Leib Gala & Auction

Saturday, October 23 @ 6 pm EST
Oct 23
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Investigating the functional single cell biology of SYNGAP1 pathways

Thurs., November 4th @ 10am PST/5pm GMT
Nov 4
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Rarebase Fundraiser is Live, donate here!

Discover our latest news & updates

ICD-11 Is Coming Soon and We Need Your Help!
Read Now
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SynGAP Research Fund Announces $308,000 Multidisciplinary Biomarker Grant to Boston Children’s Hospital
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Cannonball for a Cure #UFDcure
#SyngapCensus Q3 2021: +75 in #3Q21
883
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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SYNGAP1 Has a Patient Voice Publication (PVP)
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Quest to raise money for a cure
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Meet SYNGAP1 Patients

Jansen
Atlanta, Georgia
11 years old
Brenden
Canada
5 years old
Liza
Moscow, Russia
12 years old
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

SRF is phenomenal! I love how devoted they are to finding a treatment/cure for our favorite syngapians! I am blown away with this nonprofit organization and everything that they stand for. So thankful to have amazing individuals who have made it their life mission to helping our loved ones and their own!

Brittney

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