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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Upcoming events!

SRF | Grandparents Chat

3rd Tuesday of every month - 5pm PT/ 8pm ET
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Jan 18

SRF | Weekly Family Meeting

Wednesdays @ 5pm PT/ 8pm ET
Jan 19
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Discover our latest news & updates

SRF | 2021 by the Numbers
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#SYNGAPCENSUS 2021 Update: +102 in Q4 2021
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Join us for the 3rd Annual Roundtable
#SyngapCensus Q4 2021: +102 in #3Q21
985
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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Brotherly Love: Dice stacking for a cure!
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Third Annual Synapse Roundtable: Collaboration at Its Finest
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Meet SYNGAP1 Patients

Jackson
Canton, Georgia
6 years old
Ihsan
Istanbul, Turkey
10 years old
Mikhail
Russia
5 years old
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

SRF is phenomenal! I love how devoted they are to finding a treatment/cure for our favorite syngapians! I am blown away with this nonprofit organization and everything that they stand for. So thankful to have amazing individuals who have made it their life mission to helping our loved ones and their own!

Brittney

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