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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Register for upcoming events!

Sindrome del Cuidador Agotado

9am Colombia/10EST/11am Argentina y Chile/4pm Madrid
Learn More
Apr 17

An integrated approach to investigating GI & neurological comorbidities caused by SYNGAP1

April 22nd @ 10 AM Pacific
Apr 22
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#Sprint4SynGAP - SRF 5k Fun Run

April 24, 2021
Apr 24
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Discover our latest news & updates

#SyngapCensus 1Q21 +57 new patients
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SRF is part of COMBINEDbrain ensuring more SYNGAP1 visibility
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2ND ANNUAL SRF SYNGAP1 SCIENTIFIC ROUND TABLE #SRFRT2
EATING WITH EMMITT.
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#SyngapCensus Q1 2021: +57 in #1Q21
762
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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EnABLEing Financial Security for your SynGAP-ian - Setting up a 529 ABLE Savings Plan!
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Meeting Caren--Interview with SRF’s Jess Duggan
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Meet SYNGAP1 Patients

Jocelyn
Kansas
5 years old
Enzo
São Paulo, Brazil
8 years old
Kyle
Ohio, USA
15
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

I was originally drawn to Syngap Research Fund after coming across their mantra: Collaboration. Transparency. Urgency. I knew that it was intentional and that the organization was true to their mission of accelerating the path to therapeutics for patients suffering from Syngap1. SRF has funded ~$1M in research to-date, and their founders cover all overheads, so 100% of all donations go directly to science. This team is really making a difference!

Peter Haliburton

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