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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Register for upcoming events!

Syngap Awareness Day

June 21
Learn More
Jun 21

Prepare for the Next SRF-Funded Study with Dr. Frazier

Saturday, July 17th, 9 am PT
Jul 17
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Interpretation of SYNGAP1 Variants

Thurs., August 19th @ 10 am Pacific/1 pm Chile
Aug 19
Learn More

Discover our latest news & updates

SRF Grant to Boston Children's Hospital for a SYNGAP! Natural History and Biomarker Development
Read Now
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In Search of a SYNGAP1 Biomarker: What Is It and Why We Need One
Read Now
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2ND ANNUAL SRF SYNGAP1 SCIENTIFIC ROUND TABLE #SRFRT2
EATING WITH EMMITT.
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#SyngapCensus Q1 2021: +57 in #1Q21
762
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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Can Equine Therapy aka Hippotherapy help your Syngap patient?
Read Now
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What’s the Life Expectancy of Someone with SYNGAP1
Read Now
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Meet SYNGAP1 Patients

Charo
Buenos Aires, Argentina
8 years old
Lina
Chile
3 years old
Vivien
Frankfurt, Germany
19 years old
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

I was originally drawn to Syngap Research Fund after coming across their mantra: Collaboration. Transparency. Urgency. I knew that it was intentional and that the organization was true to their mission of accelerating the path to therapeutics for patients suffering from Syngap1. SRF has funded ~$1M in research to-date, and their founders cover all overheads, so 100% of all donations go directly to science. This team is really making a difference!

Peter Haliburton

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