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SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SynGAP & to supporting each other.

Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.

Learn More about SYNGAP1
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Upcoming events!

¿Que es Simons Searchlight?

Sabado, Oct 2 @ 9 am EST
Learn More
Oct 2

Cannonball for a Cure

October 6 - October 9, 2021
Oct 6
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1st Annual Caren Leib Gala & Auction

Saturday, October 23 @ 6 pm EST
Oct 23
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Discover our latest news & updates

COMBINEDbrain & Duke University team up to receive a prestigious FDA grant
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Syngap Research Fund (SRF) Partners with Autism BrainNet
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Cannonball for a Cure #UFDcure
#SyngapCensus Q2 2021: +46 in #2Q21
808
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10 Reasons we chose #Ciitizen for the #SYNGAP1 Digital Natural History Study. #SRFdoCiitizen
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SYNGAP1 Assigned An ICD-10 Code:  F78.A1
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What should I ask in my genetics appointment for SYNGAP1?
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Meet SYNGAP1 Patients

Teona
Russia
4 years old
Brycen
Michigan
3.5 years old
Saylor
North Carolina
4 years old
Read More Stories

Knowledge Center.

SynGAP

There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?

Learn More →

Epilepsy

Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.

Learn More →

Ketogenic Diet

Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.

Learn More →
Visit Knowledge Center

I was originally drawn to Syngap Research Fund after coming across their mantra: Collaboration. Transparency. Urgency. I knew that it was intentional and that the organization was true to their mission of accelerating the path to therapeutics for patients suffering from Syngap1. SRF has funded ~$1M in research to-date, and their founders cover all overheads, so 100% of all donations go directly to science. This team is really making a difference!

Peter Haliburton

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