Our mission is to support the research and development of treatments, therapies and support systems for SynGAP1 patients worldwide.Learn More about SYNGAP1
There are 3000+ papers available on Google if you search SynGAP, 2300+ for SYNGAP1. Where to begin?Learn More →
Our patients have some specific seizures which are well described in Sheffer’s paper, above as well as this paper from German researchers, see also the video attached.Learn More →
Putting a child on the powerful drugs that are used to treat our kids is not easy. As a result many parents are turning to the oldest known treatment for Epilepsy, the Ketogenic Diet. Many have had great outcomes. We urge you to learn more about it.Learn More →
When my daughter was first diagnosed with Syngap I was devastated. However, as I started to research more, Syngap Research Fund quickly became a source of hope. This is an immaculately managed organization that is laser focused on finding a cure for this terrible condition. The commitment to transparency and urgency to find a cure is inspiring to me and to the wider parent community...