Come and Celebrate Caren with us for Rare Disease Day!

In 2020, after recovering from COVID, Caren was given genetic testing. She was 64. She received an unexpected SYNGAP1 diagnosis. To our knowledge she is the oldest known patient in the US. Her story is remarkable, so we made a 20 minute movie about it.

SRF invites you to a watch party and panel discussion on Friday, February 26th at 4:30 PM Pacific Time.

The Panel will include:

• Daniel Defabio, Director
• Nancy Kessler, Caren’s sister
• Jessica Duggan, SRF Ambassador & Hannah’s mum
• Moderated by Mike Graglia, Managing Director of SRF & Tony's dad

Join us for a 2nd screening @ 7:30 PM GMT (UK).

Sign up via the form below!