Syngap Research Fund has partnered with Autism BrainNet to help collect postmortem brain tissue from people who have SYNGAP1. Autism BrainNet collects, processes, stores, and then distributes collected donations as requested to qualified researchers worldwide.
“Postmortem brain tissue is precious. It can help researchers understand how to help all the patients still living with the disease of SYNGAP1” says Mike Graglia, managing director of SRF. “I hate to think of my son’s passing and hope he will outlive me, but I have registered him for this donation, we all should do what we can to help science tackle this disease. We are fortunate that the Simons Foundation supports ABN and that their professional, caring and capable team are here to support our families and then steward the tissue samples. Their generous support is a gift to the community.”
Autism BrainNet accepts postmortem brain donation from people of any age that have a diagnosis of autism or a genetic diagnosis such as SYNGAP1. The process of brain tissue donation is simple for donor families, and Autism BrainNet provides compassionate support throughout.
There is no cost to families, and brain tissue donation will not interfere with funeral or memorial service plans. Pre-registration is not required for donation; however, families are encouraged to download the Intent to Donate Postmortem, Brain Tissue for Research information sheet and the Autism BrainNet Brain Donor Card, both available on the Autism BrainNet’s Donor Resources page.
For more information about the donation process, contact the Autism BrainNet at 877-333-0999 or email@example.com. You can also contact Mike Graglia at firstname.lastname@example.org to discuss further.