SYNGAP1 Stories, shared by families about their lives raising Syngapians

hosted by Ashley Frye

Ashley talks with SYNGAP1 Mom & SRF Operations Mgr. Lauren Perry about Will’s recent successful VNS replacement surgery, markers & more.

Ashley chats with Certified Christian Life Coach Heather Bensch about her daughter McKaela, who was diagnosed with SYNGAP1 as an adult.

Peter Halliburton, SYNGAP1 Dad & head of SRF's Resource Mobilization team, joins Ashley.

It's Ashley's turn, as she talks about her beginnings of volunteering for SRF and what she's working on now! Pickleball, anyone?

In Episode 5, Ashley talks with Cecilia Anastos, who has raised and trained service dogs for the SYNGAP1 & rare disease community.

Kali Worth, SYNGAP1 Mom to Kailyn (Kai) is Ashley's guest.

Ashley's Guest - SRF Community Activation Leader Corey Baysden

Ashley talks to SRF Co-founder Mike Graglia

Our Host - Ashley Frye tells her family's SYNGAP1 Story

Host Ashley Frye Introduces a New SYNGAP1 Podcast

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