Jordan is our little warrior. He was diagnosed with Syngap in February of 2019. Jordan has LGS, absolute IGA deficiency, and is non verbal. He’s endured multiple hospital stays, procedures and med changes. Seizure control is currently our biggest obstacle.
He didn’t take steps unassisted until after he turned 4, but hasn’t slowed down since. He is always smiling and has an infectious laugh. He loves music, being on the water, and anything fast! His summers consist of biking, riding in his sidecar and boating. He participates in adaptive water and snow skiing programs.