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Norway
9 years old
February 5, 2020

Lukas

Lukas was diagnosed with Syngap1 at the age of 5, in April of 2015. He was the first diagnosed in Norway at the time. We felt relieved when we received the diagnosis as we found the answer we had been searching for. Lukas did not start walking until he was 3 years old. Shortly after he turned 3, he was diagnosed with epilepsy. Lukas does not have any words, only babbling.

He loves music, going on walks in the woods, and playing with his family. He has two brothers who keep him company. Lukas loves going to equine therapy and enjoys swimming. Driving in the car and riding in trains are activities he looks forward to greatly.

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