Milea was diagnosed with Syngap1 in November of 2020. She suffers from absence and myoclonic seizures and atonic attacks (drop attacks). Milea is a happy girl who likes to swim, jump on the trampoline, car rides, play outside, climb, music and dance to motion songs. She is working to learn how to communicate with pictures as she is nonverbal. Currently she struggles with understanding how to control her feelings and not having access to items at all items. We also train everyday so she can be as independent as possible with everything. She loves animals very much and wants to get kisses and be close to them.
We can use your help to raise awareness about SynGAP1.