0
Frankfurt, Germany
19 years old
June 2, 2021

Vivien

Vivien was born on February 7th, 2002 in the University Hospital in Homburg/Saar, Germany. Vivien's mother is from Germany and her father is from Denmark. We reside in Germany close to Frankfurt/Main. Vivien was diagnosed with SynGAP1 in 2014 when she was 12 years old.

Vivien has absence seizures. At the moment, she is not taking any medication. In turn, she has basically has stopped having aggressive behaviors especially towards younger children and animals. Due to her never standing up during infancy, she has had multiple surgeries to lengthen tendons in both her legs and has been given corrective "spacer" in both her ankles to realign her feet.

Vivien is an absolute iPhone and iPad freak, where she also has fun using the talker, she can spend hours playing with the phone and tablet. Sometimes she just likes to be left alone and chill out, then she will also tell us to leave. In school she enjoys doing arts and crafts, they will will give her assignments based on her abilities. She is an extremely strong-minded young woman, if she wants something she will go all the way to get what she wants. Vivien is the most loving person. She enjoys tight hugs especially with her father.

She is a warrior.

We Need Your Help

We can use your help to raise awareness about SynGAP1.

© Copyright  2018-2021 Syngap Research Fund  | All Rights Reserved | 
Privacy Policy
RegistryNewsletter
0