Ashley is a mother of two boys, Liam and Nathan- Syngapian. Located in Oxford, MS, she is using her professional experience to bring awareness and fundraising capabilities to SRF.
Ashley says "My son Nathan was diagnosed with SynGAP1 in December of 2020 at age 3.5 after an EEG identified epileptic activity. He has been developmentally delayed since he was six months old. I’ve been a staunch advocate for Nathan his entire life, knowing that something just wasn’t right. Now that we have a diagnosis, I will be an even harder working advocate for him and all the other SynGAP1 families until we have a clinical trial for therapeutic treatment."
The Syngap Research fund is a 501(c)(3) public charity (EIN 83-1200789) headquartered in California.