US Board of Directors

Mike Graglia, MBA, MA

Managing Director

Mike has a son with SynGAP and he wants to make sure we are doing everything we can to help. So he created SRF with his wife, Ashley.

Here is a longer bio as well as images for head shots.

Rare Disease Media with Mike


Global Genes Profile Rare Leader: Mike Graglia, Managing Director, Syngap Research Fund.

Also see, Mike's Nomination to the Rare Champions of Hope.

Rare Parents Tackling Rare Diseases a profile of SRF and Ashley & Mike's work in IPM on December 23, 2022

How Parents Advocate for Their Children with Rare Diseases in Brain & Life the magazine of AAN, opens with a summary of how Ashley & Mike started SRF, April/May 2023

Mike's Podcast

More Podcasts

Episode 41 - Time is Brain: SYNGAP Research Fund with Mike Graglia.
Episode 94 - The 12 Commandments with Nasha & Mike.

August 31, 2021 - Building the Connections with the SYNGAP Research Fund

September 1, 2021 - Dawn Blessing & Mike Graglia on the Speed of Change

November 1, 2021 - Mike interviewed by Mathew Passy of Causepods about SYNGAP10.

May 3, 2022 - Onno & Lyndsey interview Mike in the Rarebase Remarks Podcast.

June 3, 2022 - David Hirsch, founder of SFN interviews Mike about fatherhood and SRF.

December 30, 2022 - Kira Dineen of DNA Today interviews Mike & Elli Brimble for a conversation about SYNGAP1-related non-syndromic intellectual disability.

External Interviews & Panels

Thank you to the Epilepsy Foundation of America for convening this exceptional panel of Men in the Rare Epilepsies.

Global Genes 2021 Panel: Developing a Dynamic Plan for Impactful Advocacy and Storytelling

Thank you Ira for featuring SRF on Progress, Potential, and Possibilities.

Thank you to Billy for this interview and 10% off link. Syngap.Fund/Billy.


July 2021 article in Americans for Safe Access Newsletter regarding CBD.

Lacking guidance from doctors, parents lead the charge in treating children with CBD by Isabella Jibilian, December 20, 2018

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