US Board of Directors

Mike Graglia, MBA, MA

Managing Director

Mike has a son with SynGAP and he wants to make sure we are doing everything we can to help. So he created SRF with his wife, Ashley.

Here is a longer bio as well as images for head shots.

Rare Disease Media with Mike

Profile

Global Genes Profile Rare Leader: Mike Graglia, Managing Director, Syngap Research Fund.

Also see, Mike's Nomination to the Rare Champions of Hope.


Rare Parents Tackling Rare Diseases a profile of SRF and Ashley & Mike's work in IPM on December 23, 2022

How Parents Advocate for Their Children with Rare Diseases in Brain & Life the magazine of AAN, opens with a summary of how Ashley & Mike started SRF, April/May 2023

Mike's Podcast

More Podcasts

Episode 41 - Time is Brain: SYNGAP Research Fund with Mike Graglia.
Episode 94 - The 12 Commandments with Nasha & Mike.

August 31, 2021 - Building the Connections with the SYNGAP Research Fund

September 1, 2021 - Dawn Blessing & Mike Graglia on the Speed of Change

November 1, 2021 - Mike interviewed by Mathew Passy of Causepods about SYNGAP10.

May 3, 2022 - Onno & Lyndsey interview Mike in the Rarebase Remarks Podcast.

June 3, 2022 - David Hirsch, founder of SFN interviews Mike about fatherhood and SRF.

December 30, 2022 - Kira Dineen of DNA Today interviews Mike & Elli Brimble for a conversation about SYNGAP1-related non-syndromic intellectual disability.

External Interviews & Panels

Thank you to the Epilepsy Foundation of America for convening this exceptional panel of Men in the Rare Epilepsies.

Global Genes 2021 Panel: Developing a Dynamic Plan for Impactful Advocacy and Storytelling

Thank you Ira for featuring SRF on Progress, Potential, and Possibilities.

Thank you to Billy for this interview and 10% off link. Syngap.Fund/Billy.

CBD

July 2021 article in Americans for Safe Access Newsletter regarding CBD.

Lacking guidance from doctors, parents lead the charge in treating children with CBD by Isabella Jibilian, December 20, 2018

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