Board of Directors

Rebecca Kohlhepp - Treasurer

Rebecca Kohlhepp has been an advocate within the Syngap community since 2011 when her daughter was diagnosed, beginning the first Syngap Family Support Group.  Rebecca served as a board member for another US Syngap Organization for close to three years with a focus on Patient Support and Engagement.  Rebecca has recently joined the Syngap Research Fund as Treasurer and is also serving as a regional Patient Ambassador.  Rebecca is an active supporter of Syngap Global Network believing that the greatest impact will be realized through global collaboration.


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