Sandy Smith has been a project manager in healthcare informatics for over 20 years. She has a B.A. in English from the University of Massachusetts and lives in the Boston, MA area. Her sweet niece Myla was diagnosed with SYNGAP1 in 2019 at age 3. At SRF, Sandy's main focus is on helping volunteers find a way to use their skills, talents and passions to help further the mission of SRF and help our beloved Syngapians. She can also be found working on a variety of projects such as software implementations, operations support, advocacy and development efforts.
The Syngap Research fund is a 501(c)(3) public charity (EIN 83-1200789) headquartered in California.