Virginie McNamar is a project manager who graduated with a Master in International Business from France. She worked as a event and volunteer manager, product director for a volunteer management software company and township community outreach director.
Her youngest son was diagnosed with Syngap1 in November 2016 at 16 months old. Since then, she dedicated her free time to help raise awareness, build strong local communities and facilitate global collaboration. She started along with other Syngap parents Syngap Global Network, an international collaboration group.